Ataxie Ataxia Canada

An international team led by a researcher from CHU Sainte-Justine and UdeM is developing a new mathematical model to improve the management of complex diseases. Recently, a research team from CHU Sainte-Justine and the University of Montreal as well as Harvard, Stanford and California universities in San Francisco used bioinformatics to produce a large volume of data to deconstruct and reconstruct the networks of interactions leading to a disease and thus bring to l...ight new phenotypes which will be able to guide clinicians towards optimized therapeutic strategies for each patient. To read more https://nouvelles.umontreal.ca//une-boite-a-outils-pour-/

"Trackz Mobility created all-terrain wheelchairs almost two years ago to allow people with reduced mobility to play outside. Now they have the vehicle, they need the playground." "What if Quebec's parks, with their breathtaking landscapes, adapted some of their trails to allow people with reduced mobility to access them? With the right equipment, this is entirely possible." [Translated from French] To read more [French source and content]:... https://www.lesoleil.com//vers-des-zones-de-plein-air-plus See more

Want to maintain a more active lifestyle, maybe even thinking about traveling? Trionic walkers could be for you! With thier big pneumatic wheels, certified braking systems and Trionic Assisted Driving, cover a multitude of courses on different surfaces with confidence and freedom. These Swedish products are covered by most major Canadian insurance providers and are guaranteed for 10 years. To help you dream of your next vacations, Trionic has brought together 11 breathtaking trails from around the world to inspire your future hiking destinations. https://www.trionic.ca//hike-the-best-walking-trails-aroun

Did you know you have the opportunity to make a difference? A small community event can often generate up to 5,000$ in donations! It is with these donations that we can afford to advance research and provide services aimed at improving the quality of life of people with ataxia. The foundation’s team can help you put your fundraising idea into practice! Your donors will automatically receive a tax receipt, and everything is done through a secure platform that has proven itself... among the largest non-profit organizations in Quebec. Here are some ideas for organizing your own fundraiser: 1. Walk / bike (such as the Ataxia Challenge) 2. Letter / email writing campaign 3. Dinner / BBQ / Wine and cheese 4. Auction 5. Poker tournament 6. Movie night To create your challenges, you have the choice to use one of its 3 fundraising formulas: Solo - Donors simply donate to your page. Participant Only - Donors can encourage your fundraiser and/or any other participant’s fundraiser. Participant and team - Donation structure per team and per participant To raise funds for the Foundation and for more information: [email protected] To give to one of our teams: https://www.imakeanonlinedonation.org//campaign/engagement

ANNUAL GENERAL ASSEMBLY OF THE MEMBERS OF ATAXIA CANADA, CLAUDE ST-JEAN FOUNDATION You are cordially invited to the annual general assembly of the members of Ataxia Canada-Claude St-Jean Foundation. The meeting will be held virtually via ZOOM on November 29h, 2020 at 1PM. This assembly will give you the opportunity to exercise your vote, inform yourself about our financial statements and our ongoing efforts and scientific endeavors. In addition, you will have the opportuni...ty to address your questions directly to our experts and board members via ZOOM’s features. Don't miss this informative opportunity! We thank you for confirming your presence and we invite you to RSVP by contacting us at: [email protected]. We will send you a secure link to our meeting AGENDA 1. Opening of meeting and welcome statement. 2. Roll Call and confirmation of quorum. 3. Nomination of assembly president and secretary. 4. Reading and adoption of the agenda. 5. Approval of the minutes of the last general meeting on Sunday November 24th 2019 6. Words from the president 7. Words from the General Manager 8. Presentation of financial statements for 2019-2020 9. Presentation and acceptance of budgetary forecast for 2020-2021 10. Nomination of financial auditors for 2020-2021 11. Reading of the notice of Nominations Committee. 12. Recommendation of the Nominating Committee. 13. Election of new directors. 14. Address by Dr. Antoine Duquette. 15. Address by scientific researcher 16. Questions period. 17. Executive committee elections. 18. Closing of the general meeting.

‘The National Organization for Rare Disorders (NORD)’s RareLaunch training program will host two days of free virtual workshops in December, with the aim of empowering leaders to start non-profit organizations and research programs to help people with rare diseases. The RareLaunch program is central to NORD’s mission and history community engagement and capacity building are in our DNA, Pamela Gavin, NORD’s chief strategy officer, said in a press release.’ To read more ... https://friedreichsataxianews.com//nord-hosting-free-rare/ See more