Cystic Fibrosis Canada

We’ve sought and received confirmation from the Ontario Government that Ontarians living with cystic fibrosis will be prioritized for Phase Two roll-out of the ...COVID-19 vaccine, starting in March 2021. We urge other provinces to follow suit. We’re reaching out to provincial governments again this week to again stress that people living with cystic fibrosis deserve early protection. See more

From us to you!

A new year brings new opportunities and new hope! Superior Shores Gaming Association

Thank you to everyone who supported the 50/50 lottery. The jackpot grew to $9380! The winning ticket number is A-5076807. Congratulations to our winner!

The jackpot is approaching $7500- wouldn't that help make this holiday seasson a lot brighter? Don't miss out on your chance to win big in CF Canada's 50/50 lottery- ticket sales close at 11:59pm tonight. www.cf5050.ca

Would winning more than $5000 make your holiday season a little merrier? Don't delay- the deadline to buy tickets in CF Canada's first 50/50 lottery is Thursday... December 3 at 11:59pm. Please share this post with your family and friends- let's make the jackpot even more festive. www.cf5050.ca See more

EARLY BIRD DEADLINE IS THURSDAY, NOVEMBER 19 AT 12 NOON. Buy your tickets now to qualify to win the early bird prize, a KitchenAid Hand mixer generously provided by CARE Appliances. The jackpot is over $4000 and growing. www.cf5050.ca

Mix it up with Cystic Fibrosis Canada’s 50/50 draw! Did you know that C.A.R.E. (Canadian Appliance Recycling Enterprise) has generously donated a KitchenAid han...dheld mixer as our early bird prize? Buy your tickets now -the early bird deadline is Thursday, November 19th at 12:00PM! The jackpot is already over $3700. www.cf5050.ca See more

Make your holidays a little bit sweeter. Enter now for your chance to win the Cystic Fibrosis Canada 50/50 draw- the winning ticket will be chosen on December 4...! The prize is already at almost $3,000 and growing each day! Although CF Canada staff and National Board Members cannot participate, our chapter volunteers are more than welcome to take part. Click below to purchase your tickets: https://www.cf5050.ca/

Cystic Fibrosis Canada's 50/50 Raffle for Ontario has now launched! Buying your tickets today could be your first step towards winning the jackpot while helping... us to go further so that Canadians with CF can enjoy everything life has to offer. Buy your tickets today! (Employees and board members of Cystic Fibrosis Canada, their spouses and partners are not eligible. Lottery Licence 12356) www.cf5050.ca

The Thunder Bay Cystic Fibrosis Chapter is proud to be one of 79 member charities of Superior Shores Gaming Association. This Charity Owned C-Gaming Centre supports numerous charities & not for profit agencies in the Thunder Bay area. Over the last 5 years they provided over 4.5 million dollars to its member organizations.

Canadian Appliance Recycling Enterprise (CARE) is in the business of carbon-reduction through the implementation of programs to residents in Ontario. CARE can proudly say they are supporting registered charities throughout Ontario donating a portion of net sales, specifically Cystic Fibrosis Canada (CF Canada). CARE offers a wide variety of appliances for purchase including refrigerators, freezers, dehumidifiers, air conditions and small tabletop appliances such as blenders ...and mixers from popular name brands. CARE will be donating a portion of net proceeds to CF Canada on all purchases made through their e-commerce platform between October 1st 2020 and January 31st 2021. Replace that old fridge or freezer, reduce humidity in your home with a dehumidifier, cool your living room with an air conditioner and even become the family chef with a new blender & mixer - all while giving back to your community. Shop now! https://carecdm.myshopify.com/

We are proud to announce that Iris Johnson, a volunteer with our Thunder Bay chapter has been awarded Ontario’s Grassroots Volunteer Award. This award acknowled...ges an individual who has made an indispensable and sustained contribution to a chapter at the grassroots level. This award is intended for someone who can always be counted on to get the job done and that is exactly how the members of the Thunder Bay chapter have described Iris. Iris has been a conscientious and knowledgeable treasurer for the chapter for the past 12 years. On top of this position, she is also the Bingo Chair working with the City of Thunder Bay on all reporting and coordinating all volunteers who work at quarterly Bingos. Iris’ entire family including her husband and daughter also volunteer in the chapter and she has encouraged many others to join the chapter. Iris leads by example and has the complete trust and confidence of the chapter for the key role that she plays. Congratulations to Iris and thank you for all that you do to bring us closer to a world without CF.

We hope everyone had a great long weekend! Just a friendly reminder that if you have any extra empties kicking around, you can easily help your CF community by returning them and then donating the proceeds! Click here to donate: https://www.cysticfibrosis.ca//events/bottle-drive-for-cf

Cystic Fibrosis Canada is excited to be launching a new event for the Fall of 2020 that allows for social distancing, family fun and most importantly, the ability to raise funds to get us closer to a world without CF. Quest4CF is a family friendly scavenger hunt taking place in select communities across Canada on Sunday, October 18th, 2020. Questers will venture out in their vehicles to solve clues and riddles on their Quest for treasure, while raising funds for the CF commu...nity! We would love to have you join us in planning a Quest4CF event in your community. Volunteers will help secure local sponsors, arrange stops and treasure for the participants and implement elements of the quest being offered by national sponsors. Do you want to find out more about how you can make sure that Quest4CF happens in your community? Do you want to help organize the event? Do you want to help on the day of the event? Join us to find out more this Thursday night at 7pm on Webex. We can’t wait to let you know all about it! Click here on Thursday at 7pm: https://cysticfibrosis.webex.com/cysticfibrosis/j.php See more

Did you know that you can easily donate to CF Canada just by returning your empty bottles and cans? If you are able to do this safely, we encourage you to return your empties for cash and donate it to our Ontario wide bottle drive by clicking the link below! https://secure.e2rm.com/registrant/TeamFundraisingPage.aspx

CF Canada’s annual #GearUP4CF ride is now virtual, and anyone can join! Complete your ride, your way, anywhere in Canada, from June 20th - July 26th 2020. Learn more here: https://bit.ly/2NYEOdb

Looking to give your teacher a meaningful gift this year? Why not give them a gift for the cure! This year you can make a donation to cysticfibrosis.ca in honour of your teacher and help us take one step closer to finding a cure/control for CF. ... #CFCANTWAIT #ENDCF https://secure.e2rm.com/registrant/DonationPage.aspx

Today we celebrate the 90th birthday of Mr. Doug Summerhayes! Happy Birthday, Doug, and congratulations on this milestone birthday. Sixty years ago, Doug was th...e founding Director and Charter President of the Canadian Cystic Fibrosis Foundation. He and his wife Donna worked tirelessly to lay the groundwork for what is now Cystic Fibrosis Canada. Please join us in wishing Doug a very happy birthday. Doug, we are grateful for your visionary work all those years ago and the difference you continue to make for the CF community in Canada and globally. P.s. in honor of his 90th birthday and the 60th anniversary of the founding of the organization, Doug has asked us to share his birthday fundraiser. If you'd like to donate check it out here: https://bit.ly/30zkhDw

People are alive today because of Cystic Fibrosis Canada’s sixty year history spent advancing cystic fibrosis research, advocacy and care. Until midnight tonig...ht gifts will be matched up to $50,000, for Giving Tuesday Now! Please give if you can. Your gift will help bring hope to Canadians living with CF. https://bit.ly/3fjGdHA See more

Cystic Fibrosis Canada has called on all provincial health ministers and drug program managers to negotiate Vertex’s offer now! Join us in telling your health minister that #CFCan’tWait

Cystic Fibrosis Canada has called on Ontario Health Minister Christine Elliott to stop making excuses and grant access to CF modulators now. Our Chief Scientific Officer, Dr. John Wallenburg has sent the letter below to Health Minsiter Christine Elliott. #cfcantwait

REMINDER: join our COVID-19 and CF Ask the Experts session today at 12pm est. We have two guest social workers who will be providing expert answers to your ques...tions on mental health and employment/ financial supports. Join via this link: bit.ly/34Cb25k Submit your questions via [email protected] or by replying to this post. The session will be available on the CF Canada website later today if you are unable to join live https://bit.ly/3dPPtCI

TODAY at 12pm est join us for the next Ask the Expert webinar for COVID-19 and CF. Join via this link: https://bit.ly/2UODvBK Guest clinicians: Dr. Ranjani Soma...yaji and Dr. Mark Chilvers Submit your questions to: [email protected] or reply to this post See you there!

Do you have questions about COVID-19 and cystic fibrosis? If you live with CF or care for someone with CF, we invite you to join us for a special Ask the Expe...rts Question and Answer webinar series. The first webinar will be held on Wednesday 1 April at 12pm EDT via Zoom: https://bit.ly/3dLtzk1 Cystic Fibrosis Canada will be hosting a webinar series during this uncertain time, to help you get the information you need. Each webinar will feature different CF clinicians who will answer questions from the CF community about how the COVID-19 pandemic is impacting their lives. Submit your questions by email to [email protected] or reply to this post. For more information on the series please visit our website https://bit.ly/2QRGHKD

Important announcement! Due to the unprecedented global situation with COVID-19 pandemic, the Walk to Make Cystic Fibrosis History is moving to a virtual format.... The date remains Sunday, May 31, 2020. The Virtual Walk will allow you to participate anywhere in Canada and to complete your walk, your way, on your own time. Register now: https://bit.ly/2JizY8c For those who have already registered, please stay tuned for more information about the digital tools and resources we will be providing to ensure the Virtual Walk is successful for all. See more

To our valued CF community, Cystic Fibrosis Canada is closely monitoring developments related to COVID-19 in Canada. We understand this is a time of concern for many people in our community and have answered some common questions on our website. Our team is still working hard behind the scenes and are here should you have any additional questions.

CF Canada won't stop until changes are made! This morning we spoke to the press about proposed changes to drug-pricing provisions and how this affects people living with CF, like Paul. Please fast forward to the 13 minute mark to hear what our team had to say.

In case you missed it, here is an advocacy update from John Wallenburg about our recent meeting with PMPRB.